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Founder Victoria Jackson featured in People magazine 24 Jan 10:27 AM (3 months ago)

From the article:

Victoria Jackson made millions as a cosmetics industry pioneer without a high school diploma. Then she put it all on hold to save her daughter. Inside her astonishing life and career.

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Founder Victoria Jackson on CBS Mornings 21 Jan 9:20 AM (3 months ago)

Mascara to medicine to save lives. Watch Victoria Jackson share her amazing story with Gayle King on CBS Mornings.

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Victoria Jackson with Jay Shetty “On Purpose” 15 Mar 2024 9:15 AM (last year)

Founder Victoria Jackson shares her lifelong experiences with Jay Shetty on the “On Purpose” podcast.

Listen Now

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NMO Behind the Mystery, a series on The Balancing Act airing on Lifetime 6 Mar 2024 9:18 AM (last year)

See Montel Williams and Victoria Jackson host the incredible story of GJCF.

Watch Now

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Considerations for Managing Heat Intolerance in NMOSD / MOGAD  21 Jun 2023 12:54 PM (last year)

1. Assure best control of disease activity with regular check-ups and personalized therapy plan 

2. Proactively manage allergies which can cause symptoms of fever (hay “fever”) / inflammation 

3. Consult with an endocrinologist or ob/gyn specialist to manage hormonal changes if needed 

4. Preventive vaccinations may effectively minimize risk or severity of infections that cause fever 

5. Light-colored, loose-fitting clothing may allow more efficient natural cooling and aid mobility 

6. Hand-held / battery-operated fans can enhance natural cooling & minimize A/C energy costs 

7. Cooling vests or ice packs may provide generalized or localized relief as individuals may prefer 

8. Cooling pillows and towels can work well during the night to promote highest quality sleeping 

9. Sun shades and cooling car seat covers can help maintain comfortable temperature on travel  

10. As always—please consult your NMOSD / MOGAD specialist and care team for best practices   

The post Considerations for Managing Heat Intolerance in NMOSD / MOGAD  appeared first on The Guthy-Jackson Charitable Foundation.

The SPHERES Registry of Patients with NMOSD Reaches Enrollment Milestone of 200 Patients 18 Apr 2023 9:22 AM (2 years ago)

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WALTHAM, Mass. and BEVERLY HILLS, Calif., April 12, 2023 /PRNewswire/ — CorEvitas, the leading sponsor of registries in autoimmune and inflammatory diseases, and The Guthy-Jackson Charitable Foundation (GJCF) are pleased to announce that the SPHERES (Synergy of Prospective Health & Experimental Research for Emerging Solutions in NMOSD) Registry for Neuromyelitis Optica Spectrum Disorder (NMOSD) has reached an enrollment milestone of 200 patients. 

Click here to continue reading.

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USAToday – A Mediaplanet Guide to Rare Diseases. 13 Apr 2023 9:11 AM (2 years ago)

A Mediaplanet Guide to Rare Diseases. This campaign was distributed with USA Today newspaper and launched on futureofpersonalhealth.com

Click here to learn more.

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Victoria Jackson on Archetypes with Meghan Markle 8 Nov 2022 10:50 AM (2 years ago)

In this dynamic episode, Meghan explores the origin and plague of “the B word” and its cousin “difficult” and how these terms are often wrongly applied to a strong minded woman, especially in business. In deep and meaningful conversations with trailblazers Mellody Hobson and Victoria Jackson, Meghan investigates the language used to gaslight women as they grow their careers as entrepreneurs and on the corporate ladder.

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The MOG Project Visits NMO Patient Day 2022 5 Aug 2022 10:43 AM (2 years ago)

The MOG Squad hit the road on July 8th for the Guthy Jackson Charitable Foundation 2022 Patient Day in Los Angeles, California!  We traveled, we learned, we made some new friends and were reunited with some old ones.  It was the first year since COVID-19 hit that we were blessed to be coming together in person to see and hug some of our own team for the first time!

Read their full blog post here.

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CorEvitas and The Guthy-Jackson Charitable Foundation Announce the SPHERES Registry: a New Research Study Benefitting Patients with NMOSD 30 Mar 2021 10:02 AM (4 years ago)

WALTHAM, Mass. and BEVERLY HILLS, Calif., March 30, 2021 /PRNewswire/ — CorEvitas and The Guthy-Jackson Charitable Foundation (GJCF) are excited to announce plans for launching the SPHERES (Synergy of Prospective Health & Experimental Research for Emerging Solutions in NMOSD) Registry for Neuromyelitis Optica Spectrum Disorder (NMOSD).  CorEvitas is the leading sponsor of registries in autoimmune and inflammatory diseases. In collaboration with GJCF, the SPHERES Registry is designed to better understand the benefit and safety of newly approved therapies for patients diagnosed with NMOSD…

Continue reading the press release.

SPHERES is a collaborative observational registry designed to collect real-world data on NMOSD patients to characterize the natural history of the disease, understand patterns of care, and explore clinical outcomes including effectiveness, patient experience, and safety events. 

A standardized set of clinical outcome assessments will be collected from both patients and their treating neurologist at the time of enrollment and approximately every 6-months during the course of routine clinical care. 

Target enrollment is approximately 800 NMOSD patients with no defined upper limit on enrollment. Approximately 35 clinical sites in the US and Canada will be recruited to participate. The registry is a long-term observational study. Sites will be compensated for their efforts.

Click here to learn more about SPHERES enrollment.

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