Blogspot - overcomingmovementdisorder.blogspot.com - Overcoming Movement Disorder
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My Favorite Things... 27 Aug 2013 | 10:47 am
Bertrand sat up on his own last night!!! Uncle Boojie celebrated his 28th birthday! Titi Aury started her first semester at the U! Victoria had a great play date at Red Butte Garden! And, Victoria...
More Porchfest 2013 26 Aug 2013 | 03:29 am
She already dances better than both her parents. ;)
Porchfest 2013 25 Aug 2013 | 08:30 am
Today we had a great time with our friends and family at Porchfest. Wow. There were some very talented artists! Can't wait for Porchfest again next year. :)
2nd Living NGLY1 Male 24 Aug 2013 | 06:54 am
Early this week we had a skype chat with the family of the 2nd living boy with N-glycanase deficiency. (In case you're keeping count, that is known NGLY1 case #10.) Yes: I finally got to see and i...
Victoria Starts Pre-K 23 Aug 2013 | 08:04 am
Today, Victoria attended her preschool open house. She LOVED it! She did not want to leave! We feel fortunate to have two enthusiastic scholars in the family. :) Actually, make that three! Today,...
Bertrand's First Day of Kindergarten 22 Aug 2013 | 05:58 am
Today was Bertrand's first day of Kindergarten! Doesn't he look handsome? :) It was emotional. There was a time when we didn't expect him to make it this far. We don't take this time--this gift.....
Victoria's First Hair Cut 21 Aug 2013 | 04:40 am
In preparation for the start of school, the kids got their hair cut today. It was Victoria's first hair cut. She was scared at the beginning, so Bertrand had to show her how it was done. Afte...
A rock and a (regulatory) hard place.* 20 Aug 2013 | 08:08 am
Watching the state of science over the past 4 years has been simultaneously hope inspiring and heart breaking. Two years ago, I reported that autologous stem cells were being used to cure human cornea...
Utah Easy To Love 14 Aug 2013 | 12:58 am
I just re-discovered "Utah Easy To Love". (I found them last year through U-FIT, but never followed up.) It is a relatively new support group for parents of children with special needs in Utah. Accor...
