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Alexion’s Soliris(R) (eculizumab) Receives Orphan Drug Designation for the Treatment of Neuromyelitis Optica (NMO) 2 Jul 2013 | 02:31 am
CHESHIRE, Conn., Jun 27, 2013 (BUSINESS WIRE) — Alexion Pharmaceuticals, Inc. ALXN today announced that Soliris(R) (eculizumab), the company’s first-in-class terminal complement inhibitor, has been gr...
Journal Watch: Soliris For Treating Neuromyelitis Optica 6 Jun 2013 | 08:29 pm
Possible good news for patients with neuromyelitis optica (aka Devic’s syndrome) and for stock holders of Alexion Pharmaceuticals. The drug Soliris (eculizumab) may be a safe and effective treatment ...
My Fighting Princess 17 May 2013 | 09:09 pm
My daughter Briannen is now 12 years old and this is her story – I would like to say this is the first time i have written it all down and sorry it is to long lol She was a … Continue reading →
Local patients help effort to find a cure for NMO 17 May 2013 | 09:06 pm
It’s estimated at least 2 million people, world wide, have Multiple Sclerosis. More women than men are affected. The average age of on set is 35. But there’s another disease of the nervous system, muc...
Walk for Riley and other NMO sufferers May 26 17 May 2013 | 09:03 pm
Just as baseball season was getting underway, rookie player Riley Reimer injured his ankle, and sadly, has been sidelined for spring camp. What’s more, the Coquitlam Little League Player had to be tak...
Pilates help woman walk again 17 May 2013 | 08:57 pm
A South Florida woman with Neuromyelitis Optica (NMO) who was afraid she would never walk again is getting stronger thanks to Pilates. video platformvideo managementvideo solutionsvideo player
GJCF Co-Founder Victoria Jackson & Ali Guthy to Appear on Marie 9 Mar 2013 | 04:20 am
The Guthy-Jackson Charitable Foundation co-founder Victoria Jackson and Ali Guthy will appear on “Marie” hosted by Marie Osmond on the Hallmark Network, March 12, 2013 at 10:00 AM PST. Visit the show’...
NMO??? Yes I have it. 8 Mar 2013 | 05:04 am
My journey began in 1997 when I was just 17 years old but I didn’t know at that time. I had lost my vision in my left eye for about 5 days and I was given prednisone treatments to restore … Continue r...
Nicole Barnes Story 6 Mar 2013 | 09:18 pm
In my early 20’s I was working when I noticed I had a bruise as well as a pain in my abdomen area. It elt like I had been doing crunches, and since I hadn’t I was concerned. I went … Continue reading ...
Blind ‘Masterchef’ offers inspiration to others 5 Feb 2013 | 10:36 pm
An inspirational chef made a stop in Atlanta to cook up a little advice. The winner of FOX’s hit show Masterchef, Christine Ha, reminds us to never let life’s obstacles keep us from our dreams. If the...
